Heavy Burdens of Family Caregivers Caring for Persons with Severe Mental Disorders
Dublin Core
Title
Heavy Burdens of Family Caregivers Caring for Persons with Severe Mental Disorders
Subject
burden of disease, caregiver, family, Indonesia, severe mental disorders
Description
Family caregivers who live with and care for individuals with severe mental disorders face serious issues. This study
aimed to investigate the burdens of these family caregivers. This descriptive phenomenological study involved 15 family
caregivers who looked after persons with mental disorders in Malang City, Indonesia; the participants were selected using
a purposive sampling technique. Data were gathered using individual in-depth interviews and observations, and then
analyzed inductively. Based on the findings, the burdens of family caregivers can be grouped into four main themes: 1)
families encountered challenges and stigma in caring for persons with severe mental disorders, 2) there was a lack of
support from the community and healthcare providers, 3) family caregivers reported experiencing various negative
emotions and interpreting negative implications from their caregiving experiences, and 4) family caregivers employed
coping strategies to alleviate their burdens. The researchers conclude that family caregivers experience complex burdens
when caring for persons with severe mental disorders; hence, family caregivers need the support of healthcare personnel
and community presence in situations of caring for persons with chronic mental disorders.
aimed to investigate the burdens of these family caregivers. This descriptive phenomenological study involved 15 family
caregivers who looked after persons with mental disorders in Malang City, Indonesia; the participants were selected using
a purposive sampling technique. Data were gathered using individual in-depth interviews and observations, and then
analyzed inductively. Based on the findings, the burdens of family caregivers can be grouped into four main themes: 1)
families encountered challenges and stigma in caring for persons with severe mental disorders, 2) there was a lack of
support from the community and healthcare providers, 3) family caregivers reported experiencing various negative
emotions and interpreting negative implications from their caregiving experiences, and 4) family caregivers employed
coping strategies to alleviate their burdens. The researchers conclude that family caregivers experience complex burdens
when caring for persons with severe mental disorders; hence, family caregivers need the support of healthcare personnel
and community presence in situations of caring for persons with chronic mental disorders.
Creator
Kissa Bahari, Arief Bachtiar, Gracia Herni Pertiwi, Ahmad Syahlani
Source
DOI: 10.7454/jki.v27i1.914
Publisher
Universitas Indonesia
Date
2024
Contributor
Sri Wahyuni
Rights
pISSN 1410-4490; eISSN 2354-9203
Format
PDF
Language
English
Type
Text
Files
Collection
Citation
Kissa Bahari, Arief Bachtiar, Gracia Herni Pertiwi, Ahmad Syahlani, “Heavy Burdens of Family Caregivers Caring for Persons with Severe Mental Disorders,” Repository Horizon University Indonesia, accessed February 21, 2026, https://repository.horizon.ac.id/items/show/10937.