Navigating care: family information needs and responsibilities in the context of schizophrenia caregiving
Dublin Core
Title
Navigating care: family information needs and responsibilities in the context of schizophrenia caregiving
Subject
counseling, empowerment, family, mental disorder, responsibility, schizophrenia
Description
Introduction: : Families of schizophrenia patients need to obtain information from health services about how to
care for them. Limited information and understanding of responsibilities in caring are still obstacles to becoming an
empowered family in caring for patients with schizophrenia. The study aimed to explore family needs regarding
information from health services and family responsibilities when caring for patients with schizophrenia.
Methods: This study used a descriptive qualitative design. The study involved families who cared for patients with
schizophrenia in Surabaya, Indonesia. Twenty participants were obtained using purposive sampling techniques and
the sample size was determined by data saturation. Data were collected using in-depth interviews, field notes and
interview question guides. The data were processed with content analysis.
Results: The results showed eight themes. Families need information about patient conditions, medication, routine
control, and counseling for patient conditions as well as for families. The family describes the responsibilities carried
out for the patient as providing support for patient treatment, fulfilling daily needs, helping with social skills, and
providing activities in spare time.
Conclusions: Adequate information from health services regarding both the patient's condition and family
counseling can help to meet the demands of care, which stimulates families to be more empowered to carry out care
responsibilities and has an impact on the ability to care better
care for them. Limited information and understanding of responsibilities in caring are still obstacles to becoming an
empowered family in caring for patients with schizophrenia. The study aimed to explore family needs regarding
information from health services and family responsibilities when caring for patients with schizophrenia.
Methods: This study used a descriptive qualitative design. The study involved families who cared for patients with
schizophrenia in Surabaya, Indonesia. Twenty participants were obtained using purposive sampling techniques and
the sample size was determined by data saturation. Data were collected using in-depth interviews, field notes and
interview question guides. The data were processed with content analysis.
Results: The results showed eight themes. Families need information about patient conditions, medication, routine
control, and counseling for patient conditions as well as for families. The family describes the responsibilities carried
out for the patient as providing support for patient treatment, fulfilling daily needs, helping with social skills, and
providing activities in spare time.
Conclusions: Adequate information from health services regarding both the patient's condition and family
counseling can help to meet the demands of care, which stimulates families to be more empowered to carry out care
responsibilities and has an impact on the ability to care better
Creator
Rizki Fitryasari1
* , Lela Nurlela2
, Hidayatus Syadiyah2
, Ah Yusuf1
, Iin Maliah3
, Galuh Adjeng
Ambarwati3
, Zamzaliza Abdul Mulud4
, Rafidah Farah Diba5
, and Dianis Wulan Sari1
* , Lela Nurlela2
, Hidayatus Syadiyah2
, Ah Yusuf1
, Iin Maliah3
, Galuh Adjeng
Ambarwati3
, Zamzaliza Abdul Mulud4
, Rafidah Farah Diba5
, and Dianis Wulan Sari1
Source
http://dx.doi.org/10.20473/jn.v19i3.58359
Date
14 August 2024
Contributor
PERI IRAWAN
Format
PDF
Language
ENGLISH
Type
TEXT
Files
Collection
Citation
Rizki Fitryasari1
* , Lela Nurlela2
, Hidayatus Syadiyah2
, Ah Yusuf1
, Iin Maliah3
, Galuh Adjeng
Ambarwati3
, Zamzaliza Abdul Mulud4
, Rafidah Farah Diba5
, and Dianis Wulan Sari1, “Navigating care: family information needs and responsibilities in the context of schizophrenia caregiving,” Repository Horizon University Indonesia, accessed April 11, 2026, https://repository.horizon.ac.id/items/show/11061.