Caregiving experiences among parents of children with physical and intellectual disabilities: a qualitative systematic review
Dublin Core
Title
Caregiving experiences among parents of children with physical and intellectual disabilities: a qualitative systematic review
Subject
children, disability, parent, qualitative systematic review
Description
Introduction: Research indicates that parents of children with disabilities undergo more significant stress and
experience poorer mental and physical health outcomes in comparison to parents of children who do not have
disabilities. This study aimed to identify caregiver experiences encountered by parents of children with physical and
intellectual disabilities.
Methods: The study used a systematic review method with the guidelines of Enhancing Transparency in Reporting
the Synthesis of Qualitative Research (ENTREQ) and PRISMA 2020. The review focused on parents caring for children
with physical and intellectual disabilities. The literature was searched for relevant studies from five electronic
databases including PubMed, CINAHL, Web of Science (core collection), Cochrane, and Scopus. This systematic review
examined 14 articles out of a total of 63,400 articles found. The study used a thematic analysis method to analyze the
study.
Results: Providing care for children with physical and intellectual disabilities requires addressing a variety of
challenges. It is critical to have a comprehensive understanding of these intricacies to ensure that families receive the
necessary support and interventions. Our synthesis identified seven themes: (1) gendered and emotional experiences,
(2) compromising quality of life: physical and psychological impact, (3) lack of knowledge about disabilities, (4) lack of
social support, (5) stigma, (6) uncertain future of the recipient, and (7) unavoidable caregiving responsibility.
Conclusions: The results of this study provide recommendations that health professionals and researchers further
explore these challenges and strive to build a supportive and inclusive environment that recognizes the unwavering
dedication of parents and prioritizes the optimal care and development of children with disabilities.
experience poorer mental and physical health outcomes in comparison to parents of children who do not have
disabilities. This study aimed to identify caregiver experiences encountered by parents of children with physical and
intellectual disabilities.
Methods: The study used a systematic review method with the guidelines of Enhancing Transparency in Reporting
the Synthesis of Qualitative Research (ENTREQ) and PRISMA 2020. The review focused on parents caring for children
with physical and intellectual disabilities. The literature was searched for relevant studies from five electronic
databases including PubMed, CINAHL, Web of Science (core collection), Cochrane, and Scopus. This systematic review
examined 14 articles out of a total of 63,400 articles found. The study used a thematic analysis method to analyze the
study.
Results: Providing care for children with physical and intellectual disabilities requires addressing a variety of
challenges. It is critical to have a comprehensive understanding of these intricacies to ensure that families receive the
necessary support and interventions. Our synthesis identified seven themes: (1) gendered and emotional experiences,
(2) compromising quality of life: physical and psychological impact, (3) lack of knowledge about disabilities, (4) lack of
social support, (5) stigma, (6) uncertain future of the recipient, and (7) unavoidable caregiving responsibility.
Conclusions: The results of this study provide recommendations that health professionals and researchers further
explore these challenges and strive to build a supportive and inclusive environment that recognizes the unwavering
dedication of parents and prioritizes the optimal care and development of children with disabilities.
Creator
Mundakir Mundakir1
* , Idham Choliq1
, Sukadiono Sukadiono2
, Vika Ramadhana Fitriyani3
,
and Firman Firman1
* , Idham Choliq1
, Sukadiono Sukadiono2
, Vika Ramadhana Fitriyani3
,
and Firman Firman1
Source
http://dx.doi.org/10.20473/jn.v19i3.55282
Date
27 August 2024
Contributor
PERI IRAWAN
Format
PDF
Language
ENGLISH
Type
TEXT
Files
Collection
Citation
Mundakir Mundakir1
* , Idham Choliq1
, Sukadiono Sukadiono2
, Vika Ramadhana Fitriyani3
,
and Firman Firman1, “Caregiving experiences among parents of children with physical and intellectual disabilities: a qualitative systematic review,” Repository Horizon University Indonesia, accessed February 21, 2026, https://repository.horizon.ac.id/items/show/11078.