Parents’ Experiences of Caring for Children with Congenital Rubella Syndrome (CRS) in Remote and Rural Areas of Indonesia
Dublin Core
Title
Parents’ Experiences of Caring for Children with Congenital Rubella Syndrome (CRS) in Remote and Rural Areas of Indonesia
Subject
Caring; congenital; parents; remote; Rubella syndrome
Description
Background: Parents of children with Congenital Rubella Syndrome (CRS) in
rural areas face limited access to medical care and specialised services, financial
difficulties, social isolation, and stigma. Research on their experiences is limited.
Purpose: This study explores parents’ experiences of caring for their children with
CRS in rural areas of Indonesia.
Methods: The research used a descriptive phenomenological approach, purposive
sampling to collect parents of children with CRS from the shelter, and snowball
sampling for other participants. Inclusion criteria included parents who cared for
CRS children over than two years old, could express their experiences, and spoke
Indonesian. Twenty-five parents participated in an in-depth semi-structured
interview. The data were analysed using the Colaizzi method.
Results: This research found that parents caring for sick children in rural areas
experienced life-altering situations that affected their mental health. In addition,
caring for sick children also caused emotional disturbances and tension in family
life. Other challenges included getting proper treatment for their child, especially in
remote rural areas, and difficulty to reach health services. Therefore, proper mental
health treatment and support were essential for parents who cared for sick children
in rural areas.
Conclusion: This study describes complexities of parents’ experiences of caring
for children with CRS, such as difficulty to accept the child's condition and feeling
burdened by their child’s case. Further studies are needed to understand cultural
influences and expand the study area.
rural areas face limited access to medical care and specialised services, financial
difficulties, social isolation, and stigma. Research on their experiences is limited.
Purpose: This study explores parents’ experiences of caring for their children with
CRS in rural areas of Indonesia.
Methods: The research used a descriptive phenomenological approach, purposive
sampling to collect parents of children with CRS from the shelter, and snowball
sampling for other participants. Inclusion criteria included parents who cared for
CRS children over than two years old, could express their experiences, and spoke
Indonesian. Twenty-five parents participated in an in-depth semi-structured
interview. The data were analysed using the Colaizzi method.
Results: This research found that parents caring for sick children in rural areas
experienced life-altering situations that affected their mental health. In addition,
caring for sick children also caused emotional disturbances and tension in family
life. Other challenges included getting proper treatment for their child, especially in
remote rural areas, and difficulty to reach health services. Therefore, proper mental
health treatment and support were essential for parents who cared for sick children
in rural areas.
Conclusion: This study describes complexities of parents’ experiences of caring
for children with CRS, such as difficulty to accept the child's condition and feeling
burdened by their child’s case. Further studies are needed to understand cultural
influences and expand the study area.
Creator
Petrus Kanisius Siga Tage1
, Herliana Monika Azi Djogo1
, Erna Febriyanti1
, Yulia Martiningsih Karmila
Letor1
, Maria Yoanita Bina1
, Maria Yasintha Goa Goa1
, Angela Muryanti Gatum1
, Herliana Monika Azi Djogo1
, Erna Febriyanti1
, Yulia Martiningsih Karmila
Letor1
, Maria Yoanita Bina1
, Maria Yasintha Goa Goa1
, Angela Muryanti Gatum1
Source
https://doi.org/10.14710/nmjn.v13i1.50633
Date
28 April 2023
Contributor
PERI IRAWAN
Format
PDF
Language
ENGLISH
Type
TEXT
Files
Collection
Citation
Petrus Kanisius Siga Tage1
, Herliana Monika Azi Djogo1
, Erna Febriyanti1
, Yulia Martiningsih Karmila
Letor1
, Maria Yoanita Bina1
, Maria Yasintha Goa Goa1
, Angela Muryanti Gatum1, “Parents’ Experiences of Caring for Children with Congenital Rubella Syndrome (CRS) in Remote and Rural Areas of Indonesia,” Repository Horizon University Indonesia, accessed February 21, 2026, https://repository.horizon.ac.id/items/show/11173.