Barriers and Support for Family Caregivers in Caring for Older Adults with Dementia: A Qualitative Study in Indonesia
Dublin Core
Title
Barriers and Support for Family Caregivers in Caring for Older Adults with Dementia: A Qualitative Study in Indonesia
Subject
Barrier; caregiving;
dementia; family caregiver;
Indonesia; support
dementia; family caregiver;
Indonesia; support
Description
Background: Understanding the barriers and support that family caregivers face
when caring for older adults with dementia is critical for improving the quality of
dementia care. However, research in this area remains limited in Indonesia.
Purpose: This study aimed to explore the barriers and support for family
caregivers in caring for older adults with dementia in Indonesia.
Methods: A descriptive phenomenological study was conducted among 15 family
caregivers who cared for older adults with dementia. Purposive sampling was used
to recruit the participants. Inclusion criteria included primary family caregivers
who provided care for four hours per day for at least six months, were proficient in
Indonesian, assisted older adults in daily activities, and were capable of expressing
their experiences. Data were collected using in-depth semi-structured interviews
and analyzed using the Colaizzi method.
Results: This study found that family caregivers faced barriers during the care of
older adults with dementia, which have decreased the quality of care. These
barriers included inadequate knowledge and skills of family caregivers regarding
dementia, stigma, lack of knowledge and awareness in the community, limited
availability of healthcare services, and healthcare professionals’ lack of knowledge
about dementia. On the other hand, support received by family caregivers within
the family, support from other family caregivers, and education provided by NGOs
about caring for someone with dementia have shown a positive impact in reducing
the burden on caregivers and improving the quality of care. Therefore, appropriate
support is essential for family caregivers caring for older adults with dementia.
Conclusion: This study showed that barriers originating from family caregivers,
community awareness, access to health services, and barriers from health workers
have impacted poor quality of care, while the support of families, fellow family
caregivers, and NGOs have contributed to good quality of care. Further studies are
needed to explore the perspectives of family caregivers representing different
cultures in Indonesia.
when caring for older adults with dementia is critical for improving the quality of
dementia care. However, research in this area remains limited in Indonesia.
Purpose: This study aimed to explore the barriers and support for family
caregivers in caring for older adults with dementia in Indonesia.
Methods: A descriptive phenomenological study was conducted among 15 family
caregivers who cared for older adults with dementia. Purposive sampling was used
to recruit the participants. Inclusion criteria included primary family caregivers
who provided care for four hours per day for at least six months, were proficient in
Indonesian, assisted older adults in daily activities, and were capable of expressing
their experiences. Data were collected using in-depth semi-structured interviews
and analyzed using the Colaizzi method.
Results: This study found that family caregivers faced barriers during the care of
older adults with dementia, which have decreased the quality of care. These
barriers included inadequate knowledge and skills of family caregivers regarding
dementia, stigma, lack of knowledge and awareness in the community, limited
availability of healthcare services, and healthcare professionals’ lack of knowledge
about dementia. On the other hand, support received by family caregivers within
the family, support from other family caregivers, and education provided by NGOs
about caring for someone with dementia have shown a positive impact in reducing
the burden on caregivers and improving the quality of care. Therefore, appropriate
support is essential for family caregivers caring for older adults with dementia.
Conclusion: This study showed that barriers originating from family caregivers,
community awareness, access to health services, and barriers from health workers
have impacted poor quality of care, while the support of families, fellow family
caregivers, and NGOs have contributed to good quality of care. Further studies are
needed to explore the perspectives of family caregivers representing different
cultures in Indonesia.
Creator
Rita Hadi Widyastuti1,2, Junaiti Sahar3
, Etty Rekawati3, Aria Kekalih4
, Etty Rekawati3, Aria Kekalih4
Source
https://doi.org/10.14710/nmjn.v13i2.55729
Date
21 August 2023
Contributor
PERI IRAWAN
Format
PDF
Language
ENGLISH
Type
TEXT
Files
Collection
Citation
Rita Hadi Widyastuti1,2, Junaiti Sahar3
, Etty Rekawati3, Aria Kekalih4, “Barriers and Support for Family Caregivers in Caring for Older Adults with Dementia: A Qualitative Study in Indonesia,” Repository Horizon University Indonesia, accessed February 21, 2026, https://repository.horizon.ac.id/items/show/11194.